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Research in Iowa

 

Research in Iowa

Subtopic Statute/Regulation Description
Registry data used for research purposes Access to Database Information and Confidentiality, I.A.C. r. 657-100.4 Access to database information and confidentiality    Classifies Electronic Pseudoephedrine Tracking System (PTS) information as...
Iowa Maternal Prenatal Screening Program (IMPSP), I.A.C. r. 641-4.4 Iowa maternal prenatal screening program (IMPSP)   Establishes standards and procures for the Iowa maternal prenatal screening program. Requires...
Authorization needed for disclosure of information for research purposes (Cross reference Privacy & Confidentiality) Central registry for brain or spinal cord injuries, Iowa Code § 135.22 Central registry for brain or spinal cord injuries.    Requires the Director of Public Health to establish a central registry for brain and...
Medical Records to be Confidential -- exceptions, Iowa Code § 229.25 Medical records to be confidential -- exceptions.    Classifies medical records related to an individual’s involuntary...
Trauma Registry, I.A.C. r. 641-136.2 Trauma registry   Requires trauma care facilities to report patient data to the Department of Public Health. Identifies reportable data as that...
Mortality/morbidity studies (disease specific, or specific to a certain population) Collection and distribution of information, Iowa Code § 135.40 Collection and distribution of information   Permits health care providers and health care facilities to provide information to the Department...
Unlawful use, Iowa Code § 135.42 Unlawful use   Prohibits the use of information collected for morbidity and mortality research, or the results thereof, from being used in legal...
Confidentiality of research data (Cross reference Privacy & Confidentiality): Researchers may only disclose the minimum necessary to achieve research goals Records Confidential, Iowa Code § 125.37 Records Confidential    Classifies records maintained by facilities that provide substance use disorder treatment as confidential and...
Publicly reported health information used for research (disease specific, registry data) (Cross reference Public Health Data Collection) Sharing of Information and Confidentiality, I.A.C. r. 641-3.12 Sharing of information and confidentiality   Classifies information and records regarding the newborn hearing screening program as confidential...